August, 2012 Archive

Rare Disease

I have a confession

I have a confession. I’ve been advocating and writing about rare disease which makes total sense since Case’s condition is, in...

Continue reading

Faith

Every step of the way

It was like that reminder, the one that you stumble upon when you weren’t even looking for it. My friends and I (to say that, it...

Continue reading

FaithRare Disease

Why? Why my child?

Why? That is a word that is heard often in the world of rare disease. It’s a word that is often heard in life. Why did this happen to...

Continue reading