August, 2012 Archive

Rare Disease

I have a confession

I have a confession. I’ve been advocating and writing about rare disease which makes total sense since Case’s condition is, in...

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Every step of the way

It was like that reminder, the one that you stumble upon when you weren’t even looking for it. My friends and I (to say that, it...

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FaithRare Disease

Why? Why my child?

Why? That is a word that is heard often in the world of rare disease. It’s a word that is often heard in life. Why did this happen to...

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