Month: March 2016

  • “Alive” Song and Video Worldwide Debut

    “Alive” Song and Video Worldwide Debut

    It’s hard to fully share with others what the life of facing Hunter Syndrome is like – from diagnosis, to grief, to fighting to save your child. I sat down one evening, after the kids were asleep, with some song lyrics that I had begun about this passionate and painful life we lead. Within 30…

  • 7 Reasons Why This Parent Is Thankful Donald Trump is Running for President

    7 Reasons Why This Parent Is Thankful Donald Trump is Running for President

    I don’t tell my kids how they should view the world. I do tell them how I view the world, how I would vote, and why. But someday (and that someday is like a speeding train from pre-teen to eighteen), they’ll have to make their own voting decisions and I want them to be informed.…