laurapearse Author

FaithRare Disease

I’ll take Blessed, with a side of MPS

I often say that I wouldn’t wish MPS on anyone else. The heartache, the initial despair, the sorrow that somehow something you did...

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Faith

A Life, Distracted

We grow up. We go to college (or not). We meet a wonderful person. We get married. We have children. We work. We play. We sleep (or not so...

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Rare Disease

Is there a downside?

Since Case was diagnosed, I felt compelled to find the bright side. That is not to say that I was happy and optimistic all the time –...

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Our Story

Praying for a ram

On April 6, 2009, I realized Case almost surely had Hunter Syndrome. No doctor had confirmed it, but we knew. There is just so little that...

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Our Story

and the Birth of Another…

Sometimes it takes death to be reborn. Sadly, it took the death-expecting disease of Hunter Syndrome for my walk with Christ to be reborn....

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Our Story

Death of a Dream…

Death of a Dream. When we first met with the geneticist at Vanderbilt, he did admit that he thought Case had a form of MPS, but he wasn’t...

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Our Story

From Birth to Diagnosis: Video

Case: Birth to Diagnosis Last year I had made a video for the school and Case’s website which explained the symptoms, tests, and...

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Our Story

My (un)Planned Son – Part 2

When we brought Case home, we were incredibly thankful. He seemed healthy and completely recovered from the breathing problem he had at...

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FaithOur StoryParenting

Pardon the Interruption….

Real life. So I have to step outside of telling the story for a minute and jump into real time. As some of you know, yesterday I was...

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Our Story

My (un)Planned Son – Part 1

Now, this child was entirely unplanned, you see. This was a go-back-to-the-calendar, count-up-the-days, scratch-your-head, then...

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