melissa@savingcase.com Author

Rare Disease

Welcome to our world

Project Alive has now released 4 episodes of a mini-documentary series featuring Hunter Syndrome families like ours....

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Rare Disease

What Charlie Gard’s battle says to rare disease parents

The battle for the life of Charlie Gard ...

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Parenting

Plan your best summer day yet!

Last summer it wasn’t until the week before school started back that I realized...

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Rare Disease

When You Outlive Your Generation

I grew up in the 70's and 80's, the era of neon and Michael Jackson, pop rocks and Coke, E.T. and Stand by Me....

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Rare Disease

Letter No. 14: Dear Mothers

Dear young, innocent, typical Mothers, There was a day when I was just like you....

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52 Letters

Letter No. 13: Dear Cousin

Dear Jen, I found a picture the other day where we had to be only 5 or 6....

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52 Letters

Letter No. 12: Dear Dragon Mom

Dear Jamie, “Stay with us.”...

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52 LettersFaith

Letter No. 11: Dear Conviction

Dear Dr. Russell Moore, I’m someone who self-identifies as an “evangelical.”...

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52 Letters

Letter No. 10: Dear Alma Mater

Dear Georgetown College, The high school cafeteria smelled like fear when we met....

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52 Letters

Letter No. 9: Dear Miracle

Dear sweet Case, I watched you sleep last night....

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